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ABOUT JAX
Jax was diagnosed with a single gene defect in the MTRFR gene on October 30, 2014. The MTRFR gene mutation causes him to be non-verbal, fed through a feeding tube, affects his ability to walk and optic nerve atrophy which leads to blindness. It is caused by a defect in the function of mitochondria within the cells of the body.
Our goal is to slow the progression of this disease while working towards a cure for Jax and future generations. This fundraising event directly benefits gene therapy research which looks to be a promising life-extending treatment for Jax who is now 10.
MTRFR (C12orf65) Symptoms
- Ataxia
- Optic Atrophy
- Peripheral Neuropathy
- Shortened Lifespan
- Endocrine/Metabolic Defects
- Neuromuscular Disorder
EVENT DETAILS
- 11:00 AM: Registration opens
- 12:30 PM: Safety Briefing
- 1:00 Shoot Begins
- 5:00 Gun Raffles & Whiskey Raffle
- 6:00 Live Music Begins
$100Junior Shooter (18 and under; concert ticket included)
$125 Individual Shooter (concert included)
$500 Four-man Team (concert included)
$150 Golf Cart (seats 4)
$25 Concert Ticket
SPORTING CLAY FORMAT
100 Targets
4-Person Teams
Team, Individual & Junior Awards will be presented
Mulligans Available for Purchase
- 1 for $10 or 12 for $100
- A Mulligan gives you an opportunity to re-shoot a target
- Max score is 100
- Mulligans must be purchased before the shoot begins
FOOD
Food will be available to purchase.
CONCERT DETAILS
Live Texas Country music starts at 6:00 PM. Bring your own lawn chair and BYOB.
If you're interested in paying with cash or check, please email [email protected].
Thank You to Our Sponsors!
We are looking forward to this event and your participation! All proceeds benefit gene therapy research for MTRFR through the Hereditary Neuropathy Foundation, a non-profit 501(c)3.
$100000 Goal
$0
Total Raised
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